Publications

The 2023-2024 @MATES4Kids Activity Report was launched on the 20th of March, 2025, at CLAN and @MATES4Kids' parallel event at the 69th Commission on the Status of Women.

This report highlights the @MATES4Kids Network's progress in reducing preventable CAH mortality by 30% by 2030. It showcases the efforts of our champions across six WHO regions, working to improve access to life-saving treatments, strengthen communities, and scale newborn screening globally.

Inside, you'll find:

Key achievements from our global Community of Practice.
Success stories from champions in the Philippines, Colombia, and Pakistan.
Strategic frameworks guiding our work.
Tools to track progress toward our 2030 goals.
Updates on our Community Development Grant recipients' impact.

This report celebrates our progress and calls for further collaboration to address healthcare inequities for children with CAH and other chronic conditions.

In September 2024 at the Science Summit at the UN General Assembly, @MATES4Kids launched a briefing paper titled "A community-centred, collaborative, health system strengthening approach to reducing the preventable mortality associated with CAH by 30% by 2030." This paper examines the inequitable burden of preventable mortality and morbidity faced by children with congenital adrenal hyperplasia (CAH) and other non-communicable diseases (NCDs) in low-income countries. Using the WHO’s Six Building Blocks framework, it outlines practical solutions for improving access to essential medicines, expanding newborn screening, and strengthening CAH communities. It also introduces the @MATES4Kids Toolkit to support collective action and monitor progress. With a rights-based, community-centered approach, this review aims to reduce CAH-related mortality by 30% by 2030 through global collaboration and sustainable health system improvements.

This inaugural report (January 2022 to June 2023) details the foundational activities and structure of @MATES4Kids, as well as the activities conducted since the movement’s inception. We are excited to share the many successes already experienced and the groundwork they lay for the future.

In February 2022, the @MATES4Kids movement prepared a Briefing Paper outlining our ambitious goals and proposed activities to help achieve the SDGs.

The briefing paper combines expertise, insights, data and examples from around the world to paint a detailed picture of the current circumstances and challenges facing the international CAH Community, and outlines a path forward for change. This paper presented a specific request to the World Health Organisation to work with @MATES4Kids to develop an innovative forum. From such collaboration, strategic action will identify the critical, practical, scalable actions needed to redress inequities and optimise affordable access to the essential medicines and equipment needed by #EVERYchild living with CAH around the world if they are to survive and thrive.

@MATES4Kids is an international movement committed to reducing the preventable mortality associated with Congenital Adrenal Hyperplasia (CAH). CLAN (Caring & Living As Neighbours) is the founding Secretariat of @MATES4Kids and this Activity Report captures key initiatives and achievements of the movement from January 2022 to June 2023.

Acknowledgement of Country. In the spirit of reconciliation, @MATES4Kids acknowledges the Traditional Custodians of Country throughout Australia and the connections of Aboriginal and Torres Strait Islander peoples to land, sea and community. In particular, we acknowledge the Wallumedegal Peoples of the Eora Nation, on whose land CLAN (Caring & Living As Neighbours) is headquartered. We pay our respect to Elders past and present and extend that respect to all First Nations leaders around the world.

Publications​

Publications