Improving Access to Essential Medicines and Equipment
Affordable access to CAH and childhood NCDs medications must be achieved for every country. Hydrocortisone and fludrocortisone tablets are both on the WHO’s Essential Medicines List for Children (EMLc), and must be included in every National Essential Medicines Lists (NEML) – most especially when CAH is included on national NBS panels. It is a fact that countries have introduced NBS Programs without first ensuring the medicines needed to treat the condition/s are affordably available. This is a tragedy for the families that are most affected.
Once hydrocortisone and fludrocortisone are included on NEMLs, they must be included in national insurance schemes. Universal Health Coverage (UHC) is essential for childhood NCD Communities. Systems must be in place to ensure families of children diagnosed with NCDs are not bankrupted by health expenditures.
Once hydrocortisone and fludrocortisone are included on NEMLs, they must be included in national insurance schemes. Universal Health Coverage (UHC) is essential for childhood NCD Communities. Systems must be in place to ensure families of children diagnosed with NCDs are not bankrupted by health expenditures.
Read more about our access to medicines initiatives:
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Ensuring Supplies of HC and FC in BoliviaMembers of the @MATES4Kids network experienced collaborative success in improving access to HC and FC in Bolivia. Bolivia currently mandates NBS, however, there is no access to HC or FC. Normally it is obtained from Argentina thanks to the commitment of paediatric endocrinologists... Read more
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Pakistan and Binden Pharma: Improving Access to MedicineOne of the pressing challenges that Pakistan had been grappling with pertained to the availability and accessibility of essential medicines for Congenital Adrenal Hyperplasia (CAH). These vital medications were being imported from foreign countries, incurring substantial costs. In an earnest attempt to address this predicament, a solution was devised: local manufacturing. To embark on this path, it was imperative to ensure that these medications were included in the WHO’s list of essential medicines... Read more
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Amidst Crisis, a Joint Effort Brings Essential Medicines to UkraineOn March 7, 2022, the @MATES4Kids network urgently pivoted after receiving a request to assist with access to CAH medicines in Ukraine amidst their tragic and ongoing conflict. With thanks to Life for a Child, an NGO in our network championing efforts for children living with Type 1 diabetes, @MATES4Kids connected with Direct Relief for the first time, creating the foundation for a strong relationship and commitment to ongoing collaboration... Read more
International Collaboration for Medicines in Sri LankaIn 2022 CLAN received a request from paediatric endocrinologists in Sri Lanka for assistance securing access to hydrocortisone and fludrocortisone tablets for the 200+ children living with CAH in their country. The financial crisis in Sri Lanka was threatening access to affordable essential medicines, and families living in the most disadvantaged circumstances were particularly vulnerable...Read more
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