Our Community of Practice

The @MATES4Kids CoP is bringing together a broad range of stakeholders from across the globe to meet, connect, exchange knowledge, advocate, and raise awareness of issues facing the NCD community. The @MATES4Kids CoP uses the WHO’s Knowledge Action Portal (KAP) as a platform to facilitate communication and collaboration.

@MATES4Kids recognizes the six WHO regions of the world and collaborates with champions in each of these regions to facilitate and scale action locally. The CoP fosters collaboration through quarterly meetings where members receive the opportunity to share their successes, challenges, and other relevant insights with colleagues. Presenters are asked to specifically follow the 4P structure:

Progress - general updates on where things are at
Pearls - success stories that other CAH Communities and partners could learn from (with an emphasis on how it was achieved)
Priorities - Key challenges and problems the region will be focusing on in coming 3-6 months
Partners - who they worked with or plan to work

At each quarterly meeting, three regions report on their achievements and status, enabling each region to report twice each year. This rotation of meetings allows countries in similar time-zones to connect together in real time (AFR, AMR and EUR champions meet together, as do EMR, SEAR and WPR champions). Where possible, conferences and other events are leveraged to bring stakeholders together (as occurred in March 2023, with the International Meeting of Pediatric Endocrinology (IMPE) in Buenos Aires).Minutes from this meeting (including video recording) are available on the WHO KAP.

How does the CoP connect?

@MATES4Kids uses the WHO KAP on NCDs as the primary platform for connecting our CoP. The KAP is a “knowledge sharing and community platform dedicated to enhancing NCD prevention and control through multisectoral and multistakeholder collaboration.” It will facilitate accessible information and regular dialogue among our global network to drive practical action. @MATES4Kids believes the exchange of knowledge, resources, success stories, ideas, and more will profoundly benefit the international CAH Community and those who work to make it better.

Learn About the KAP

@MATES4Kids is an international movement committed to reducing the preventable mortality associated with Congenital Adrenal Hyperplasia (CAH). CLAN (Caring & Living As Neighbours) is the founding Secretariat of @MATES4Kids and this Activity Report captures key initiatives and achievements of the movement from January 2022 to June 2023.

Acknowledgement of Country. In the spirit of reconciliation, @MATES4Kids acknowledges the Traditional Custodians of Country throughout Australia and the connections of Aboriginal and Torres Strait Islander peoples to land, sea and community. In particular, we acknowledge the Wallumedegal Peoples of the Eora Nation, on whose land CLAN (Caring & Living As Neighbours) is headquartered. We pay our respect to Elders past and present and extend that respect to all First Nations leaders around the world.