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Community and Stakeholder Engagement |
Every child and family living with CAH around the world is part of a diverse yet increasingly connected international CAH Community.
National CAH Support Groups can bring sustainability to health system strengthening activities when they are appropriately resourced, supported and empowered to engage in decision making and co-design processes with as broad a range of stakeholders as possible. Indeed, international CAH Support Groups have a long history of connecting and collaborating in efforts to support those most in need.
Educational resources in local languages are vitally important to help CAH Communities grow strong.
National CAH Support Groups can bring sustainability to health system strengthening activities when they are appropriately resourced, supported and empowered to engage in decision making and co-design processes with as broad a range of stakeholders as possible. Indeed, international CAH Support Groups have a long history of connecting and collaborating in efforts to support those most in need.
Educational resources in local languages are vitally important to help CAH Communities grow strong.
A book for young women living with CAH (translated from the original Bahasa Indonesian version). See video introducing the book here!
CAH PePTalk - educational videos and lectures on CAH for families and health professionals
CARES Foundation - CAH Research, Education and Support
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Educational resource for families - preparing for school
VIDEO - CAH Club Meeting, Vietnam, 2012.
GPED Booklets for Health Professionals and Families
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Educational resource for families - sick day management
Managing adrenal Insufficiency at school - a video for teachers and families.
CLAN Checklist to support planning for a CAH Club Meeting (Aug 2023)
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WHO Framework for Meaningful Engagement of people living with NCDs.
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CAH International Fall 2023 Newsletter
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Las Hormonas y Yo
Hiperplasia Adrenal Congénita (HAC) |
CAHSAPI November 2023 Forum Newsletter
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A Focus on Children and Non-Communicable Diseases - The NCD Alliance
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Redressing Inequities for Children Living with CAH and Other Chronic Health Conditions of Childhood in Resource-Poor Settings
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Hiperplasia Suprarrenal Congenita: Una Guia Para Los Padres
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CLAN- Report on the Situation of Congenital Adrenal Hyperplasia in Vietnam, 2008
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Adrenal Indonesia Website - CAH Resources
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A Book for Young Women Living with CAH (translated to Sinhala and Tamil for the youth of Sri Lanka). See video introducing the book here!
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Event Report from Intersex Asia for Parents of Intersex Children with CAH in the Philippines. Watch this video about Intersex Asia's involvement at Pride Philippines!
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A Community-Centred, Collaborative, Health System Strengthening Approach to Reducing the Preventable Mortality Associated with CAH by 30% by 2030
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Report from Sri Lanka's CAH Club Meeting for CAH Awareness Month
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Report from World Children’s Day at CWMH, Fiji
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