Community and Stakeholder Engagement

Every child and family living with CAH around the world is part of a diverse yet increasingly connected international CAH Community.

National CAH Support Groups can bring sustainability to health system strengthening activities when they are appropriately resourced, supported and empowered to engage in decision making and co-design processes with as broad a range of stakeholders as possible. Indeed, international CAH Support Groups have a long history of connecting and collaborating in efforts to support those most in need.

Educational resources in local languages are vitally important to help CAH Communities grow strong.

A book for young women living with CAH (translated from the original Bahasa Indonesian version). See video introducing the book here!

CAH PePTalk - educational videos and lectures on CAH for families and health professionals

CARES Foundation - CAH Research, Education and Support

Educational resource for families - preparing for school

VIDEO - CAH Club Meeting, Vietnam, 2012.

GPED Booklets for Health Professionals and Families

Educational resource for families - sick day management

Managing adrenal Insufficiency at school - a video for teachers and families.

CLAN Checklist to support planning for a CAH Club Meeting (Aug 2023)

WHO Framework for Meaningful Engagement of people living with NCDs.

CAH International Fall 2023 Newsletter

Las Hormonas y Yo
Hiperplasia Adrenal Congénita (HAC)

CAHSAPI November 2023 Forum Newsletter

A Focus on Children and Non-Communicable Diseases - The NCD Alliance

Redressing Inequities for Children Living with CAH and Other Chronic Health Conditions of Childhood in Resource-Poor Settings

Hiperplasia Suprarrenal Congenita: Una Guia Para Los Padres

CLAN- Report on the Situation of Congenital Adrenal Hyperplasia in Vietnam, 2008

Adrenal Indonesia Website - CAH Resources

A Book for Young Women Living with CAH (translated to Sinhala and Tamil for the youth of Sri Lanka). See video introducing the book here!

Event Report from Intersex Asia for Parents of Intersex Children with CAH in the Philippines. Watch this video about Intersex Asia's involvement at Pride Philippines!

A Community-Centred, Collaborative, Health System Strengthening Approach to Reducing the Preventable Mortality Associated with CAH by 30% by 2030

Report from Sri Lanka's CAH Club Meeting for CAH Awareness Month

Report from World Children’s Day at CWMH, Fiji

@MATES4Kids is an international movement committed to reducing the preventable mortality associated with Congenital Adrenal Hyperplasia (CAH). CLAN (Caring & Living As Neighbours) is the founding Secretariat of @MATES4Kids and this Activity Report captures key initiatives and achievements of the movement from January 2022 to June 2023.

Acknowledgement of Country. In the spirit of reconciliation, @MATES4Kids acknowledges the Traditional Custodians of Country throughout Australia and the connections of Aboriginal and Torres Strait Islander peoples to land, sea and community. In particular, we acknowledge the Wallumedegal Peoples of the Eora Nation, on whose land CLAN (Caring & Living As Neighbours) is headquartered. We pay our respect to Elders past and present and extend that respect to all First Nations leaders around the world.